Page 1: Volunteer Information Sheet and Consent Form
Opinions on cervical cancer screening
Thank you for your interest in taking part in this study. Before you decide whether to participate, it is important for you to understand why we are conducting the research and what it will involve. Please read the following information carefully. If anything is unclear, or you have questions, you can email the researcher Sarah Wilding (S.E.Wilding@leeds.ac.uk).
What’s the purpose of the study?
The research is funded by Yorkshire Cancer Research. It is being conducted by researchers at the University of Leeds.
We are trying to find out about decision making relating to cervical cancer screening (sometimes called a ‘smear test’). As part of this, we are asking women who are eligible for screening to identify the different factors that influence whether or not you choose to go for screening.
What does the study involve?
The study will take approximately 10-15 minutes to complete. First, you will be asked to fill in some demographic details. You will then be asked about the different factors that influence your decision making relating to screening.
You’ll be asked to write down a list of barriers (the things that put you off going for screening). You’ll also be asked to rank some of the common barriers that have been identified by other women. After this, you’ll be asked to think about the different factors that encourage you to go for screening. Finally, you’ll be asked to rank some of the factors that have been commonly reported by other women.
Will my participation be confidential?
All your information will be kept confidential. We will never ask you to provide you with personal information (e.g. name or email address).
Do I have to take part?
No – it is entirely up to you to decide whether or not to take part. You are also free to withdraw from the study at any time by not completing the questionnaire.
It is your decision whether you want to take part in the study. By clicking continue at the bottom of this page, you are indicating your consent to take part. However, you will still be free to withdraw at any time without giving a reason. All the data collected from you during the experiment will be kept completely confidential. You will not be able to be identified in any reports or publications of the findings.
Are there any risks to me taking part?
There should not be any risks involved in taking part in this study. Some women may find screening to be a sensitive subject. For example, it may remind you of unpleasant experiences in the past, or of experiences that others have shared with you. You are free to stop the survey at any time.
Are there any benefits?
There are a number of benefits to taking part. You will be adding to the body of scientific knowledge on cervical cancer screening. By taking part, you will be providing valuable insight into the different factors that underlie decision making about cervical cancer screening. This also may be a topic that you do not get to discuss very often and this survey will give you an opportunity to share your views.
If you have more questions
If you have any questions at any time, feel free to contact the research team (Sarah Wilding: S.E.Wilding@leeds.ac.uk) or the Principal Investigator Professor Daryl O’Connor (D.B.OConnor@leeds.ac.uk).
This research has been approved by the University of Leeds Faculty of Medicine and Health review panel (ref: PSC-645; date approved: 19/03/2019).
I confirm that I have read and understand the information sheet explaining the above research project and I have had the opportunity to contact the researchers about the project if I have any questions.
I understand that I remain free to withdraw from the study at any time without giving a reason and without there being any negative consequences.
I understand that once my responses to the questionnaire are submitted, my responses will be anonymised and my data cannot be withdrawn.
I agree for the data collected from me to be used in further research.
I understand that I will not be able to be identified by any reports or publications as all data is anonymous and I will be identified only by a code.
I agree to participate in this research