The survey is relevant to CCGs both with and without an EPaCCS in place

This survey aims to capture progress towards implementing EPaCCS across England by:

  • helping to understand how they are being used and identifying how local implementation can be supported.  
  • supporting the development of national guidance and the national information standard.

The survey comprises of questions about:

  • implementation and use of EPaCCS - this takes around 10-15 minutes and should be completed by a CCG end of life care lead or a nominated representative.  
  • numbers of patients registered - this takes around 30 minutes and you can nominate a data manager to complete this part (we will contact them separately).

Download a version in Word to preview the questions

If you prefer, you may complete and return the Word version as an alternative to completing the survey online.  Please download the version relevant to your CCG:

CCGs with an EPaCCS in place

CCGs planning an EPaCCS

CCGs without an EPaCCS

Please ensure you click on the "Finish" button at the end to submit your survey responses

You will be offered a benchmarking report describing levels of implementation, comparing local data with anonymised data from other CCGs.                                                   

If you have any questions, please contact:

Matthew Allsop (Chief Investigator): m.j.allsop@leeds.ac.uk

or Jakki Birtwistle (Research Fellow): j.birtwistle@leeds.ac.uk

THIS RESEARCH IS BEING CONDUCTED BY RESEARCHERS AT THE UNIVERSITY OF LEEDS, KINGS COLLEGE LONDON AND UNIVERSITY OF HULL. WE ARE WORKING IN PARTNERSHIP WITH NHS ENGLAND & IMPROVEMENT AND PUBLIC HEALTH ENGLAND. 
APPROVAL GRANTED BY UNIVERSITY OF LEEDS SCHOOL OF MEDICINE ETHICS COMMITTEE: MREC-20-008.  IRAS NO: 288296 (13.11.2020 V1).