Page 1: Welcome

Thank you for choosing to complete this survey which is exploring the long-term psychological needs of people with prostate cancer.

The survey is subject to ethical guidelines set out by the University of Leeds, UK, including informed consent, the right to withdraw and protection of anonymity.

Information Sheet

Please take the time to read the following information carefully to help you decide whether or not you would like to participate in the study. It is important that you understand why the research is being done and what it will involve. 

What is the purpose of this study?

This study is exploring the long-term psychological needs of people with prostate cancer to understand the impact that experiencing prostate cancer can have on quality of life. We hope to raise awareness and contribute to scientific understanding of the psychological needs of people who have experience of prostate cancer in the UK. Doing so can help us to identify factors which increase vulnerability to poorer wellbeing and quality of life post treatment, as well as ways to reduce the impact of the long-term consequences of prostate cancer on everyday life and wellbeing. 

Why have I been invited to take part?

You have been invited to take part in our survey as someone who has received a diagnosis of prostate cancer a year or more ago. Only over 18's are being asked to take part as this study recognises that experiences may be different for adults. 

What do I have to do?

If you agree to take part you will be asked to complete an online survey. The survey involves a series of questionnaires that will ask you a little about who you are, and about quality of life, mood, body image, masculinity and your perception of prostate cancer. This survey will take approximately 20-30 minutes to complete.

Do I have to take part in the study?

Taking part in this study is entirely voluntary. If you decide to take part after reading this information sheet you will be asked to proceed to the survey questions. You can withdraw at any time during the questionnaire, by shutting down the browser. You do not have to give a reason for not participating. 

What happens if I say yes but then later decide I don’t want to take part?

You are able to exit the survey at any time by shutting down the browser. Once the survey has been sent (by pressing the ‘finish’ button) you will not be able to withdraw your responses as all responses are stored anonymously.

Prize Draw

At the end of the survey, as a thank you for completing it, you will be given the option to enter into a prize draw for the chance to win a £30 Amazon voucher. If you would like to enter the prize draw you will be asked to enter your email address. This is completely optional. Email addresses will be stored separately from the survey data, anonymously and securely.

What happens to the information I give?

All the information that we collect during this survey is stored anonymously on a secure University of Leeds server and will be used in the analysis of this research. After this research has been completed, the data will be kept securely for use in further research by the University of Leeds and their academic collaborators. All of the data obtained will be treated as confidential and stored securely as is required by the Data Protection Act. The data collected will be used as part of a doctoral thesis and may be written up for publication. No identifying information about you will be included in the report. For further information, please see the University of Leeds Research Privacy Notice:

https://dataprotection.leeds.ac.uk/wp-content/uploads/sites/48/2019/02/Research-Privacy-Notice.pdf

Will I be contacted as a result of anything I answer in the survey?

This survey is anonymous therefore you cannot be contacted regardless of what you answer in the survey. If you require health and well-being support please contact one of the publicly available support services listed at the end of the survey.  

Who has reviewed this study?

This study has been reviewed by the School of Medicine Research Ethics Committee, University of Leeds (MREC 20-046).

If I have questions about the study who can I ask?

If you require any further information please contact the Doctoral student who is completing this research within the University of Leeds School of Medicine (Programme in Clinical Psychology), Jennifer Kirby (umjlak@leeds.ac.uk). You can also contact the supervisors of this project, Dr Matthew Mulvey (m.r.mulvey@leeds.ac.uk) or Dr Fiona Thorne (f.m.thorne@leeds.ac.uk).

Project title                            Document type           Version #             Date

What are the long-term         Information sheet        2                         21/05/2021

psychological needs of

men with prostate cancer?

Thank you for reading this information sheet. By pressing the 'Submit and continue' button below you agree to participate in this study.

Please note that once you have clicked on the 'Submit and Continue' button at the bottom of each page you cannot return to review or amend that page.

If you submit your answers you will not be able to return to this page.